Unlike most other kids my age, I have 9 medical specialists (down from 19!) and three therapists. I work hard to achieve things that come naturally to most children.
I have had more doctors appointments in my few short years than most people will have in a lifetime. I have had to undergo surgery, hospitalisations, multiple blood draws, X-rays, hearing tests, EEGs, speech therapy, physiotherapy, horse riding therapy, occupational therapy, social skills therapy and more. I have low muscle tone, delayed fine and gross motor development, social delays and speech articulation issues. My therapy and medical needs will be ongoing….this is a marathon, not a sprint.
This year my parents are fundraising for therapy needs, special equipment (such as computer apps and sensory equipment), social skills support and expenses associated with my special dietary needs and supplements. In Australia, these things are not funded by the government, so my family has to pay for it all.
For most of my life, my Nana and Papa, Mummy and Daddy and Aunties and Uncles have been helping to pay for all of my additional needs.
We now we find ourselves needing to reach out to our friends and community to help support me on my journey.
You can make a real difference to my future by helping to fund the specialised therapy and equipment I need to overcome the barriers of Kabuki Syndrome and Asperger’s.
All donations and any support that you can offer are very much appreciated. Funds are held in a DGR (Deductible Gift Recipient account and will only be used for my needs. Here are some ways that you can help me:
- Make a donation online at www.developingfoundation.org.au/sophierose
- Think of a fundraising event we can do, tell us about it, and perhaps even help us to run it!
- Send my developing foundation fundraising webpage to your family, friends, workmates or even your Boss.
All donations of $2.00 or more are tax deductible. Corporate sponsorships are also available. The Developing Foundation commits 90% of our fundraising directly to my expenses. The balance is used by the charity to cover administration and credit card expenses. All donations are managed by The Developing Foundation and paid directly to my therapists etc, so you can be assured your money will be spent on meeting my needs.
Kathy Reed (Sophie’s Mum) and
Frank Egyed (Sophie’s Dad)